Join our
WhatsApp groups
- Four small, private groups. Not a public forum.
- People who have lived it, in your language and time zone.
- Free, and open to anyone on the registry.
1. Fill in the registry form3 minutes. Open to anyone with PFS, PSSD or PAS.
2. Open the link in that emailIt lists all four groups, by country and language.
3. Tap your group to ask to joinAn admin approves it, usually within a day.
Four groups. Pick the one that fits.
For people living with PFS, PSSD and PAS. Grouped by language and time zone, so someone is usually awake.
United Kingdom & Ireland
England · Scotland · Wales · N. Ireland · Ireland
Scandinavia
Denmark · Sweden · Norway · Finland · Iceland
Benelux, France & Italy
Belgium · Netherlands · Luxembourg · France · Italy
US & Canada
United States · Canada
Every group runs through the registry. It takes 3 minutes, and the link comes straight back by email.
How to join a group
No application. Nothing to prove. 3 steps.
Fill in the registry form
No one screens you, and no diagnosis is needed. A pseudonym (a made-up name) is fine. The link arrives by email right away.
Open the link in that email
Pick the group for your country and language. Every group covers PFS, PSSD and PAS.
Tap your group to ask to join
It opens WhatsApp and sends a request. An admin approves it by hand. That takes a few hours, at most a day.
Why it works this way
These groups are quiet places. People bring hard days to them: the appointment that went badly, the symptom that came back.
- That only works if everyone is who they say they are, so access runs through the registry.
- We no longer print the invite links here. Anything on a public page stays public. Search engines and archives keep a copy, for good.
- The links now reach only people we hold a record for.
- A human admin still approves every request inside WhatsApp.